It's been while since I've posted anything. Lest I bore the reader with the monotony of my life and all the little trials that keep happening, I thought I would just wait until I had something exciting and fun to share. Well I realized last night, that it was likely going to be awhile before I posted anything if I waited for something spectacular to share.
On March 11, Ian had another sedated ABR (brain stem hearing test). Turns out he has moderate to severe hearing loss in both ears. BIG SHOCK right? Not really, I expected it... I am hoping that it means plenty of the chemo drugs made it to the brain. LOL! Lately I have noticed that Ian doesn't speak as clearly and he doesn't hear me if his back is turned, or if there is a lot of back ground noise....and frequently he asks "What did you say?" Nevertheless, if I speak directly to him and in an even tone, he understands what I am saying. On March 17, we went to the Primary Children's Rehab Annex in Bountiful to have Ian fitted for his hearing aids. He picked out a red and blue swirl colors for the actual in the ear piece and red for the hearing aid that goes behind the ear. He is really excited about his hearing aids. We are scheduled to pick them up on April 8. The funny thing is that we have been talking to Ian about them and getting him excited about them, and now Bryce wants a pair. When we tell him that he doesn't need hearing aids, he gets sad. With any luck he'll earn himself a pair of glasses when he gets older, if he's inherited my poor eyesight!
A week ago today Mike took Bryce to the ER at Davis Hospital. Turns out he had a double ear infection. First one ever! I could not get a same day appointment at the Hill AFB clinic. That is a whole other story in itself!!! Three days later I took Spencer to the ER because I couldn't an appointment on base. He ended up being admitted over night because his o2 Sats were in the 80's. They did a chest x-ray and determined that he has bronchitis possibly going into pneumonia. GREAT! So the last few days he's been on breathing treatments, an antibiotic, and an oral steroid. The doctor believes that because of his "premature" birth, ( I should say lungs) , that he will most likely develop asthma. Through all of this Ian has remained the healthiest, and yet even he has a cold with a cough. When we took Ian for his hearing test at Primary Children's, we went as a family, and Mike was being a little more relaxed about where Spencer and Bryce played (to include letting them crawl and play on the floor....YUCK). Anyhow, no doubt that is how everyone picked up all the bugs they came home with. Two days after the hearing tests Ian was throwing up and sick. It lasted 5 days. Mike understands a little better now why I am so hard core about not letting the boys touch whatever they want and about all the hand sanitizing.
So now that everyone seems to be on the mend, we are hoping for some nice weather so that we can get out and do something! We all have cabin fever! On a lighter note, I just have to share some funny things that Spencer is doing. He loves to get on the trike or other riding toys and actually knows how to propel himself around the house. It is so cute! He's only 14 months old and doing such big boy things! Another thing he loves to do is open the dishwasher door, pull it down and climb up on top and sit while pulling out the dirty or clean silverware for me. He's loves it! He makes it an actual challenge to do the dishes. Funny boy! We are really so grateful to have him in our family! Such a little charmer!
The coming month is going to be so busy! Ian is scheduled for a brain and spine MRI, and EccoCardiogram (sp?), a Lumbar Puncture, and a clinic visit. Of course my anxiety levels are on the rise ...... AGAIN. I know it will be alright. I'll just be glad to have it all over and another three months of peace before it happens again. I think the part that I dislike the most is having him sedated all the time. Also, things should be easier too, Grandma and Grandpa Jackson are coming to be with us for the whole month. We're all exicited about their visit. They have been gone since the end of November and so much time has passed. We're so lucky to have their love and support!